Jordan Nedevski

Jordan Nedevski

Saturday, 31 January 2015 08:08

Programme

   PRELIMINARY PROGRAMME

 Friday 2 October

08.00-19.00

Registration; Hospitality Desk

09.00-19.00      

Exhibition & Poster Display

12.00-13.00

Buffet Lunch

13.00-13.40

Haemophilia in Serbia

Chair: Dr Danijela Mikovic

WORKSHOP 1:  Creating a place for people with inhibitors:

Building a community

OPEN TO ALL

Facilitator: Kristine Jansone

Speakers: Brian O’Mahony,
Paul Giangrande, Jim O’Leary,
Mirko Jokic, Miguel Crato

13.00-13.20          

    Comprehensive care and inhibitor treatment

    Prof Predrag Miljic

13.20-13.40          

    The rarer bleeding disorders in Serbia    and    Europe

Dr Danijela Mikovic

13.40-14.00      

Gene therapy

Prof Flora Peyvandi

14.00-15.00

Women and bleeding disorders

Chair: Prof Angelika Batorova

14.00-14.30            

Genetic and bleeding risk in carriers of haemophilia: diagnosis and care

Dr Roseline d'Oiron

14.30-15.00

Pregnancy and menorrhagia

Prof Rezan Khadir

15.00-15.30  

Tea/Coffee & Poster Session – Exhibition Area

15.30-17.00

Complications in haemophilia

Chair: Prof Paul Giangrande

WORKSHOP 2: Women in the bleeding disorder community:

Starting a European conversation

OPEN TO ALL

Facilitator: Yannick Collé

Speakers: Christina Burgess, Evelyn Grimberg, Helene Doscher

15.30-16.00

Thrombosis in bleeding disorders

Prof Philippe De Moerloose

16.00-16.30

Orthopaedic surgery

Dr Luigi Solimeno

16.30-17.00               

To be confirmed

17.00-17.30

Tea/Coffee & Poster Session – Exhibition Area

17.30-19.00  

Pharmaceutical Symposium 1 - Sobi

19.30-21.00  

Welcome Reception and Buffet Supper

Brian O’Mahony, EHC President

Vladimir Ilijn, Hemophilia Society of Serbia

Dr Dejan Kostić, Assistant Minister in the Ministry of Health

 

 Saturday 3 October

08.00-19.00      

Exhibition; Poster Display; Registration; Hospitality Desk

08.30-10.00

Pharmaceutical Symposium 2 - Pfizer

10.00-11.00

Further complications in haemophilia

Chair: Prof Mike Makris

10.00-10.30

Ageing and cardio-vascular health

Prof Pier Mannucci

10.30-11.00

Management of inhibitors

Prof Mike Makris

11.00-11.30    

Tea/Coffee & Poster Session – Exhibition Area

11.30-13.00

Pharmaceutical Symposium 3 – Baxalta

13.00-14.00      

Buffet Lunch – Exhibition Area

14.00-16.00

Long-acting factors

Chair: Prof Flora Peyvandi

14.00-14.20

  Clinical experience

  Prof Manuel Carcao

14.20-14.40

Measuring lab assays

Prof Jovan Antovic

14.40-15.00

PK-guided treatment

Prof Paul Giangrande

15:00-15:20

Post-marketing surveillance and failures

Prof Flora Peyvandi

15:20-15:40

Economics

Brian O’Mahony

15.40-16.00

Discussion

16.00-16.30

Tea/Coffee & Poster Session – Exhibition Area

16.30-18.00    

Pharmaceutical Symposium 4 – Novo Nordisk

19.00-19.30  

Coach Departure for City Tour

20.00-24.00

Conference Dinner

 Sunday 4 October

09.00-13.00      

Exhibition; Poster Display; Hospitality Desk

09.00-11.00      

EHC General Assembly (open to NMOs only)

11.00-11.30    

Tea/Coffee – Exhibition Area

11.30-13.00

EHC General Assembly (open to NMOs only)

Saturday, 31 January 2015 08:08

Committees

Conference Organisers

European Haemophila Consortium

Hemophilia Society of Serbia

 

Conference Organising Committee

Tatjana Markovic

Vladimir Illijin

Brian O’Mahony

Jordan Nedevski

Amanda Bok

 

EHC Steering Committee

Brian O’Mahony – President

Jordan Nedevski – Vice-President Finance

Radoslaw Kaczmarek

Traci Marshall-Dowling

Olivia Romero-Lux

Giuseppe Mazza

Amanda Bok (CEO, ex-officio)

Alain Weill (ex-officio)

 

Scientific Committee

Dr Danijela Mikovic

Prof Dr Ivo Elezovic

Prof Dr Dragana Janic

Prof Paul Giangrande

Prof Flora Peyvandi

Prof Angelika Batorova

Prof Michael Makris

Brian O’Mahony

Radoslaw Kaczmarek

 

Conference Secretariat

Conference Organisers Limited (Ireland)

 

Friday, 31 January 2014 11:39

Programme

PRELIMINARY PROGRAMME

Friday, 4 October, 2013

06.00-09.00           Exhibition set-up

07.00-19.00            Registration; Hospitality Desk

09.00-19.00            Exhibition & Poster Display

09.00-10.30            WORKSHOP 1: Treatment compliance strategies                                                    Facilitator: Prof Flora Peyvandi, Italy

10.30-11.00            Tea/Coffee – Exhibition Area

11.00-12.30            WORKSHOP 2: How to choose treatment products for your country                  Facilitator: Brian O’Mahony, Ireland

12.30-13.30            Buffet Lunch – Exhibition Area

13.30-15.00            WORKSHOP 3 – Communication between doctors and patients                          Facilitator: Prof Paul Giangrande, UK

13.30-15.00            Comprehensive care in developed and developing countries                                 Chair: Dr Daniel Coriu, Romania

13.30-13.50            Hematologist from an established country perspective                                           Prof Mike Makris, United Kingdom

13.50-14.10            Hematologist from an emerging country case study                                                Prof Margit Serban, Romania

14.10-14.30            Psychologist support                                                                                                      Anne Duffy, Ireland

14.30-14.50            Categorization of haemophilia treatment centers in Europe                                   Dr Gabriele Callizani, Italy

14.50-15.00            Q & A

15.00-15.30            Tea/Coffee – Exhibition Area

15.30-17.00            WORKSHOP 4 Family dynamics and siblings                                Facilitator:    Anne Duffy, Ireland

15.30-17.00            Aspects of comprehensive care of haemophilia                                       Chair:       Thomas Schindl, Austria

15.30-16.00            EUHASS adverse events update 2009-2012                                                                Prof Mike Makris, United Kingdom

16.00-16.30            Orthopaedic surgery – still a present task in haemophilia care                               Dr E C Rodriguez-Merchan, Spain

16.30-17.00           Treatment and prevention of inhibitors                                                                        Dr Günter Auerswald, Germany

17.00-17.30         Tea/Coffee Break – Exhibition Area

17.30-19.00         Pharmaceutical Symposium 1 - Baxter

19.30-21.00         Welcome Reception and Buffet Supper

Saturday 5 October

08.00-09.30     Pharmaceutical Symposium 2 – Novo Nordisk

09.30-11.00       Treatment of rare bleeding disorders                                                       Chair:                   Prof Flora Peyvandi, Italy

09.30-10.00     Rare bleeding disorders - an overview                                                                                    Prof Flora Peyvandi, Italy

10.00-10.30       EDQM recommendations for haemophilia care in Europe                                                Prof Paul Giangrande, United Kingdom

10.30-11.00       Orphan drugs, clinical trials and haemophilia                                                                     Prof Flora Peyvandi, Italy

11.00-11.30       Tea/Coffee – Exhibition Area

11.30-13.00       Pharmaceutical Symposium 3 - Sobi

13.00-14.00       Buffet Lunch – Exhibition Area

14.00-16.00       Access to new treatment for haemophilia – opportunities, challenges and barriers    Chair: Prof Margit Serban, Romania

14.00-14.30       Long acting products                                                                                                              Prof Paul Giangrande, United Kingdom

14.30-15.00       Gene therapy                                                                                                                            Prof Amit Nathwani, United Kingdom

15.00-16.00       Economical aspect and possible barriers:

                           Patient organization perspective                                                                                         Brian O’Mahony, Ireland

                           Industry perspective                                                                                                              Dr Geoffrey McDonough, Sweden

                           Clinical perspective                                                                                                                Prof Wolfgang Schramm, Germany

16.00-16.30       Tea/Coffee – Exhibition Area

16.30-18.00       Pharmaceutical Symposium 4 - Pfizer

19.00-20.00       Sightseeing Tour

20.00-23.00       Gala Dinner

Sunday 6 October

09.00-13.00       Exhibition; Poster Display; Hospitality Desk

Tuesday, 28 January 2014 13:52

Programme

PRELIMINARY PROGRAMME

 

 

Friday 3 October

06.00-09.00

Exhibition Set-Up

07.00-19.00

Registration;   Hospitality Desk

12.00-19.00      

Exhibition &   Poster Display

09.00-10.30

WORKSHOP:   Challenges in Mild and Moderate Haemophilia  

(Open   to all delegates)

Facilitators: Dr Gary Benson and Thomas Sannié

10.30-10.45

Tea/Coffee   – Workshop Area

10.45-12.15

WORKSHOP:   Youth-Led Strategies for Engagement

(Open   to all delegates)

Facilitators: Amanda Bok and Michael van der Linde

12.15-13.00

Buffet   Lunch – Exhibition Area

13.00-14.00

Hepatitis:   An Update

Chair: Brian O’Mahony

NMO WORKSHOP: Haemophilia   Treatment Centres and NMOs Working Together  

(Open   to NMOs only)

Facilitators: Dr Barry White and Tatjana Markovic

13.00-13.40          

Update on Hepatitis C Treatment

Prof Geoff Dusheiko

13.40-14.00      

Follow up on Hepatitis C

Declan Noone

14.00-15.00

The Role of   Physiotherapy in Haemophilia

Chair: Prof Angelika Batorova

14.00-14.30            

Physiotherapy with Minimum Factor Availability

Piet de Kleijn

14.30-15.00

Physiotherapy with Optimum Factor Availability

Fionnuala Sayers

15.00-15.30  

Tea/Coffee   – Exhibition Area

15.30-17.00

Organisation   Issues in Treatment

Chair: Gordon Clarke

NMO WORKSHOP: Financing   of Haemophilia Societies: a Survey-Based Workshop (Open to NMOs only)

Facilitators: Brian O’Mahony and Traci Marshall Dowling

15.30-16.00

Treatment Centre Certification

Prof   Paul Giangrande

16.00-16.30

The Northern Ireland Comprehensive Care Model

Dr Gary   Benson

16.30-17.00               

The EU Cross-Border Healthcare Directive: One   Year On

Clinical View: Prof Cedric Hermans

Patient View: Radoslaw Kaczmarek

17.00-17.30

Tea/Coffee   – Exhibition Area

17.30-19.00  

EHC Symposium 1 sponsored by SOBI

European   Haemophilia Recommendations: Debate with a new generation

19.30-21.00  

25 Years of the European Haemophilia Consortium

Welcome Reception and Buffet Dinner

Brian   O’Mahony, EHC President

Gordon   Clarke, The Haemophilia Society UK

Lord   Mayor of Belfast

Health   Minister

 

Saturday 4 October

08.00-19.00      

Exhibition;   Poster Display; Registration; Hospitality Desk

08.30-10.00

EHC Symposium 2, sponsored by BAXTER

10.00-10.30

Reproductive and   Genetic Issues

Prof Rezan Khadir

10.30-11.00

Update: European   Association for Haemophilia and Allied Disorders (EAHAD)

Prof   Philippe de Moerloose

11.00-11.30    

Tea/Coffee   – Exhibition Area

11.30-13.00

EHC Symposium 3, sponsored by PFIZER

13.00-14.00      

Buffet   Lunch – Exhibition Area

14.00-16.00

Novel   Treatment Products: Issues and Implications

Chair: Radoslaw   Kaczmarek

14.00-14.30

An Update on Novel Treatment Products

Prof Paul Giangrande

14.30-15.00

Individualisation of Therapy

Prof Claude Negrier

15.00-15.30

Experience with the New Products To Date

Speaker TBC

15.30-16.00

Discussion

16.00-16.30

Tea/Coffee   – Exhibition Area

16.30-18.00    

EHC Symposium 4, sponsored by NOVO NORDISK

19.00-19.30  

Coach Departure   for Titanic Belfast

20.00-23.00

Tour of Titanic   & Gala Conference Dinner

 

 

Sunday 5 October

09.00-13.00      

Exhibition;   Poster Display; Hospitality Desk

09.00-11.00      

EHC NMO General   Assembly (open to NMOs only)

11.00-11.30    

Tea/Coffee   – Exhibition Area: EHC 2014 on-the-spot iPad raffle

11.30-13.00

EHC NMO General   Assembly (open to NMOs only)

 

 

Tuesday, 28 January 2014 09:26

General Information

We’ve put together some useful information and advice when planning your trip and to help you make the most of your stay Belfast.

You can also download the free conference iphone app from Belfast Convention Bureau, which has everything you need at your fingertips – directions, venues and accommodation, travel and tourist information – check out www.visit-belfast.com.

Insurance

The Conference Organising Committee, or its agents, will not be responsible for any medical expenses, loss, damages or accidents during the Event. We would in particular draw your attention to the cancellation policy in respect of registration fees and accommodation. In the event that, for whatever reason, the Conference has to be cancelled or postponed, the Organising Committee, and/or its agents, will be responsible only for refund of monies received. We recommend that delegates insure themselves for medical and cancellation charges.

 

Climate

Belfast weather is relatively mild even in the winter with average temperatures ranging from 19ºC in the summer to 2ºC in the winter. Like most UK cities, the weather can be changeable so always best to be prepared and pack your umbrella and layers should you need them. 


Dialling codes

The international dialling code for Northern Ireland is 00 44 28 and the area code for Belfast is 90. The number for the emergency services is 999 and this will connect you to the police, fire, ambulance, lifeboat and mountain rescue services. Directory enquiries can be accessed by calling 118 500 or you can use online services for free such as Yell.com to search for contact details of local businesses and amenities.  

Electric Current

220 volts


Taxis

With a professional fleet of over 600 vehicles and a wide range of transportation services available, Belfast’s official taxi company and BVCB partner is Value Cabs. Debit/credit card payment is available in every vehicle and bookings can be made by dialing 028 9080 9080. Further information can be found at valuecabs.co.uk 


Banking

The currency used in Northern Ireland is sterling (£) but some shops do except euro. Most banks are open on 9am-5pm Monday to Friday and all major credit and debit cards are widely accepted throughout the city. Foreign exchange facilities are available in the Belfast welcome centre, our tourist information centre. 


Shopping

Most shops in the city are open on the following times:

Monday-Tuesday                9am-7pm

Wednesday-Friday              9am-9pm

Saturday                          9am-6pm

Sunday                             1pm-6pm

Tuesday, 28 January 2014 09:26

General Information

We’ve put together some useful information and advice when planning your trip and to help you make the most of your stay Belfast.

You can also download the free conference iphone app from Belfast Convention Bureau, which has everything you need at your fingertips – directions, venues and accommodation, travel and tourist information – check out www.visit-belfast.com.

Insurance

The Conference Organising Committee, or its agents, will not be responsible for any medical expenses, loss, damages or accidents during the Event. We would in particular draw your attention to the cancellation policy in respect of registration fees and accommodation. In the event that, for whatever reason, the Conference has to be cancelled or postponed, the Organising Committee, and/or its agents, will be responsible only for refund of monies received. We recommend that delegates insure themselves for medical and cancellation charges.

 

Climate

Belfast weather is relatively mild even in the winter with average temperatures ranging from 19ºC in the summer to 2ºC in the winter. Like most UK cities, the weather can be changeable so always best to be prepared and pack your umbrella and layers should you need them. 


Dialling codes

The international dialling code for Northern Ireland is 00 44 28 and the area code for Belfast is 90. The number for the emergency services is 999 and this will connect you to the police, fire, ambulance, lifeboat and mountain rescue services. Directory enquiries can be accessed by calling 118 500 or you can use online services for free such as Yell.com to search for contact details of local businesses and amenities.  

Electric Current

220 volts


Taxis

With a professional fleet of over 600 vehicles and a wide range of transportation services available, Belfast’s official taxi company and BVCB partner is Value Cabs. Debit/credit card payment is available in every vehicle and bookings can be made by dialing 028 9080 9080. Further information can be found at valuecabs.co.uk 


Banking

The currency used in Northern Ireland is sterling (£) but some shops do except euro. Most banks are open on 9am-5pm Monday to Friday and all major credit and debit cards are widely accepted throughout the city. Foreign exchange facilities are available in the Belfast welcome centre, our tourist information centre. 


Shopping

Most shops in the city are open on the following times:

Monday-Tuesday                9am-7pm

Wednesday-Friday              9am-9pm

Saturday                          9am-6pm

Sunday                             1pm-6pm

Tuesday, 28 January 2014 09:03

Committees

Conference Organisers

European Haemophila Consortium
The Haemophilia Society UK

 

Conference Organising Committee

Gordon Clarke (Chair)

Dr Gary Benson

Bernard Manson

Brian O’Mahony

Jordan Nedevski

Amanda Bok

 

EHC Steering Committee

Brian O’Mahony – President EHC

Jordan Nedevski – Vice-President Finance EHC

Radoslaw Kaczmarek

Traci Marshall Dowling

Olivia Romero-Lux

Guiseppe Mazza

Amanda Bok (CEO, ex-officio)

Alain Weill (ex-officio)

 

Scientific Committee

Dr Gary Benson

Prof. Paul Giangrande

Prof. Flora Peyvandi

Brian O’Mahony

Radoslaw Kaczmarek

 

Conference Secretariat

Conference Organisers Limited (Ireland)

Monday, 04 November 2013 07:23

European Haemophilia Consortium

The European Haemophilia Consortium (EHC) is an organisation that gathers the European national haemophilia patient associations (National Member Organisations) from 44 countries in Europe including all 28 EU Member States.

The EHC is working to reduce the burden of the disease on both the individual and on society. Its mission is to improve the quality of life of people with Haemophilia in Europe. The EHC facilitates consultation, discussion and dissemination of information on important issues related to bleeding disorders.